In 2019, a new life-saving medication (Trikafta) was brought onto the market for Cystic Fibrosis patients. While available in the U.S. and other countries, it is not available in Canada due to potential legislation changes that wish to put a cap on medication prices. These legislation changes will be detrimental to CF patients and will affect 1 in 12 Canadians living with a rare disease as these drugs tend to be more costly; therefore, denying patients a chance at a ‘normal life.’
I ask you, my community, to rally with me in Halifax, Nova Scotia to fight these legislation changes to allow people like me a chance to LIVE.
Thank you so much,
Jessica Hepworth, Millbrook Band Member
WHEN: MARCH 25th, 2020
WHERE: There will be a bus departing from the HERITAGE CENTRE parking lot in MILLBROOK at 9:00am sharp to get to Halifax by 10:30am where we will meet outside of City Hall Square (1841 Argyle Street, Halifax)
For more information, please check our FaceBook event page, “CF GET LOUD Nova Scotia Rally”
https://www.facebook.com/events/605725820281254/